Usher syndrome is an extremely rare genetic disorder caused by a mutation in any one of at least 11 genes resulting in a combination of hearing loss and visual impairment. It is a leading cause of deaf-blindness and is at present incurable. This powerful workshop is conducted by Chen Kroter, who was born deaf and at age 21 was diagnosed with Usher syndrome. Using Chen’s personal story special equipment, the workshop simulates the experience of deaf-blind individuals.

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